I have finally decided it was time to bridge the gap between our friends and family who we may not live so close to since moving to Florida. It's hard to believe that it has been over 3 years. However, this really feels like home to us now. After all, Alexia is now over 2 years old and Mary Sue got pregnant with her here!
I will try to keep the posts brief but do them often. I will feature pictures and short videos. If there is anything you would like to see in addition let me know (even though I will probably ignore it).
Tyler is doing exceptionally well! We are well aware that most of you have kept him in your prayers. Thank You! We are convinced that the Lord intervened. For those less aware of what I am referring to allow me to explain.
Tyler was progressing seemingly normally (I say 'seemingly' b/c I had little reference as he was our first child) until 18 months. He had some words and was really happy. Somewhere around the birth of Lexi he started to regress a bit. He lost ALL language and his behavior became more and more
awkward. At 24 months he allowed no affection or holding, would not talk at all, focused in on and became obsessive with certain routines, would not engage with other children his age, etc... At the age of 24 months Tyler was able to arrange the alphabet in order with absolutely no problem. He understood numerical order and had other really amazing abilities. It was exciting but we knew is was unusual.
His condition was really hard on us and especially Mary Sue. With advice of both of our sisters and some researching on the web we discovered some people were having success taking gluten and casein out of the diet. Gluten is the protein that exists in many grains (most often wheat) and casein is the protein in cow's milk. In a nutshell, these proteins are thought to be responsible for blocking incoming information in some children.
Tyler LOVED foods with grain. He had cereal for breakfast, a sandwich for lunch, and pasta for dinner. He ate an amazing amount of food. We were at a party with friends one evening and the attention turned to Tyler as we loaded his plate with his third helping of an adult sized portion of
penne. The kid loved to eat.
Surprisingly, we were able to introduce substitute foods fairly easily. Our brother-in-law, Matt, is a
celiac along with two of his children. This means that their intestines cannot digest gluten properly. So, Mary Sue's sister, Erin, was a big help in introducing us to foods to buy. In general, they are not as
palatable. However, there is a substitute for just about every food.
Anyway, we started the diet on a Saturday. On Sunday morning, as I was buckling Tyler in his seat, I said 'Hi'. He looked at us and said 'Hi' back. Remember, he had not said a
word in about six months. On Tuesday he had about 20 letters of the alphabet and could count to 10. He had brought back many words that he once knew such as banana, food, ball, and of course Mama. It absolutely poured from him. By the end of the week he was saying 'I love you'. His behavior changed as well. He became more affectionate, less frustrated, and his focus became less intense. He awoke!
Since, Tyler is amazing and delightful. He is in preschool and we have activities at our church several days a week. He really likes engaging with others. His language is a bit behind but he is doing fine. He loves to go get tacos with his Dad after school and ice cream (casein doesn't seem to affect him at all) after trips to the beach. He bugs us to go to the park all the time. His best bud is his little sister. Together, they run up and down the hall with cars, blow bubbles, dress up, do puzzles, and chase each other. They love watching Dora and and Diego. We crack up when they throw
Spanish words our way. Both are counting in
espanol as well. Who says TV is bad?
He still has some goofy quirks. As I tucked him in bed one night he told me 'This one's 14...it's not 13'. I could not figure out what the
heck he was talking about. Finally, I found he was referring to the numbered song that was playing on the
cd player in his room. He had memorized the songs numerically. We know he has memorized some books without us knowing he was doing it. He is able to give two words for each letter of the alphabet and he doesn't always give the same ones.
We are still not certain what caused his delays and disruption. We are just thankful that he has been healed.
I guess you want to hear about our other brat. It will have to wait until the next post. Sorry Lexi!